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one very long year…

When you have a child, a single year suddenly has a whole new meaning.

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0-1 = your needy sack of pooping potatoes turns in to a happy, wobbling and babbling miniature human.

1-2 = your happy, wobbling and babbling miniature human turns in to a laughing running firecracker holding a match just under their wick… seemingly delightful yet threatening to explode at any minute.

I am just at the beginning of 2-3, so that is as far as my brilliant analogies go for now. But having experienced two years with a little human, who is a hilarious blend of my husband and myself, I can only imagine how much more intensely we will love this Dr Jekylle and Mr Hyde character by the time he is four.

Which is why I lose it every time I think about this family who just found out that their four-year-old little boy has stage four cancer and that they will have to spend the next year hoping with all their hearts that chemotherapy and radiation will be enough to cure their son.

Until I heard the news about this family, I didn’t realize that discovering something is terribly wrong with my child has become my biggest fear. You just don’t think something like this will happen to someone you know, and you certainly don’t think it will ever happen to you. Arann said tonight that he couldn’t do it. He doesn’t think he is strong enough.

Luckily the Porrata-Powell family is incredibly strong and they are extremely well-loved by their community. But it is going to be a very long year as they try to make life as normal as possible for their little family, while simultaneously fighting the biggest fight of their lives… so any extra love and support they can get from outside of their community will be hugely appreciated.

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To learn more about this lovely family and to see how you can help, please click here: http://www.ezpowell.org/

About the author paige green

Paige Green is a documentary and portrait photographer, whose storytelling approach to photography frequently addresses issues involving agriculture, land use, and food. Her work is featured in nine books and has been published in Glamour, National Geographic Traveler, New York Times Magazine, Conde Nast Traveler, GQ, Country Living, House Beautiful, and Culture. Paige lives in Petaluma, CA with a house full of boys.

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9 Comments

  1. I’m sorry to hear that about the Porrata-Powell family. Wishing them all the strength they will need during this trying time. Thanks for sharing this!

    Reply

  2. HI Paige, so sorry to hear. Of course we’d support. Please let them know of this great FB group that I’m in for moms of Sarcoma warriors.https://www.facebook.com/groups/MomcologySarcomaMoms/

    Reply

    1. Thanks, Laura. I will pass this on to them. I am sure they will be grateful to have an online community to reach out to.

      Reply

  3. This family needs support now more than ever… Ron, Ez’s father, passed away suddenly this morning. Please help support Alex, big-sister Lu & sweet Ez in any way you can, and continually have them in your hearts, thoughts & prayers.

    Reply

    1. Thank you, Jill. Along with the entire West Marin community and anyone who knew Ron Powell, I am in shock and heartbroken for this family. I will share updates and encourage people to support this family as they now face and even harder road than they could have ever imagined possible. Life is insanely short and it doesn’t give you any warning… we need to go hug the people we love as much as possible.

      Reply

      1. Oh my God, my heart is hurting for the whole family. Ron was such an incredible force of life! My God wrap His arms around Alex, Lu and EZ. Comfort them and know they will see him again. My prayers are with all of you that feel this pain.

  4. Thinking of you all and sending love. So sorry to learn of these tragedies. Donna Pozzi

    Reply

  5. Hi Paige,
    I hope you, Arran and your boys are doing well!
    How is your friend doing since she lost her husband and how is little EZ? I often think of them and keep them in my prayers.
    If there’s anything we can do at this end please let me know
    anne x

    Reply

  6. Paige & Amanda
    I’ve just noticed I’m logged into your account still Amanda from earlier! apologies
    Paige it’s Anne in Ireland, I’ll still at usual fb or wordpress addresses
    hugs and apologies x

    Reply

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